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Brain Injury LinksThese links are organized into 10 major categories to make finding information easier. Links are listed alphabetically. Please report any dead links to: info@neurotraumaregistry.com Professional Resources - Sites that offer technical resources and information. Programs/Services - Websites that offer a service. Included here are Assistive Technology, brain injury rehab programs with useful information on their websites, publishers specific to brain injury, and other resources. Research - Links to sites with information about research and clinical trials in brain injury rehabilitation. Support Groups and Advocacy - Groups that advocate for people with brain injury, or people with disability in general. TBI Model Systems - A group of 16 programs across the United States that work together to gather data about brain injury.
General Disability SitesAbilityLinks AbilityLinks is an advocacy program based in Illinois that matches job-ready people with disabilities to employers through technology. In addition, AbilityLinks provides ongoing educational programs and support resources to help people with disabilities and employers learn to work together. Access Unlimited AccessAble Vehicles for People with Disabilities. Disability Central Web resource for many issues related to disabilities, offering links to many useful sites. Disability Guide A great resource for the DC area with information about accessibility of tourist attractions, restaurants, theatres, and much more. The best resource I have seen for the area. Family Friendly Fun Offers Family fun and family health resources for families with disabilities. InternationalHealthDirectory.com- Health Directory and information on the web. Jim Lubin's Disability Links Page A large resource of links to all types of disability related links. All sites are reviewed before being added to the collection. MoreHealthcare.com - links to health directory resources and information websites. National Rehabilitation Awareness Foundation The National Rehabilitation Awareness Foundation's mission is to educate people about the benefits and impact of rehabilitation; develop programs which aim to increase opportunities for the nearly 50 million Americans with disabilities, and help those who are disabled live up to their fullest potential. Government SitesCenters for Disease Control (CDC) The CDC offers statistical information about both brain and spinal cord injury, as well as prevention information. Disability Info A federal government site -a quick way to start your search for government related services or information specific to disabilities. Covers only the federal government. Job Accomodation Network (JAN) The Job Accommodation Network (JAN) is a free consulting service that provides information about job accommodations, the Americans with Disabilities Act (ADA), and the employability of people with disabilities. Job Accomodation Network Listing Links to State Vocational Rehab Offices Links to the state offices of vocational rehabilitation. Vocational rehabilitation can be a great resource for people with brain or spinal cord injury trying to return to work, enter the workplace, or return/attend school. National Center for the Dissemination of Disability Research A large amount of disability related reports, studies, articles, etc are available through this site. National Institute of Neurological Disorders and Stroke (NINDS) Part of the National Institutes of Health, NINDS funds research into many different types of neurological disorders. Their site offers good basic information about brain injury. National Library of Medicine (NLM) Part of the National Institutes of Health, the NLM offers one of the largest databases of scientific publications. This is an excellent place to read abstracts of research articles that have been published. Also check out a more "user friendly" section of the site called "MEDLINE PLUS". National Rehabilitation Information Center (NARIC) Part of the National Institutes of Disability Rehabilitation and Research (NIDRR) system, NARIC offers a quick way to search much of the disability research information funded through the federal government. Medical/Drug InformationHelping Patients A program by the Pharmaceutical Research and Manufacturers of America. The program offers assistance in obtaining prescription medications. Check the site to see what companies and what medications are covered.
Medline Plus Drug Information Guide A service offered by the National Library of Medicine. The site offers information about medications such as side effects, appropriate dosages, usage, etc. Needy Meds An information source to learn about programs available to assist people in getting prescription medications. PDR Health A website by the Physicians Desk Reference (PDR). The site gives information on prescription medications, drug interactions, and more. RX List This site offers information on medications by name, and condition treated, and offers information on effectiveness, dosages, and more. Safe Medications A service offered by the The American Society of Health-System Pharmacists (ASHP). Offers information on potential drug interactions, appropriate use of medications, and how to find information on medications. Personal Pages and MoreBetsy's Support Page An inspiring personal story about how one person can make a difference in the life of another. Brain Injury-a Personal Perspective - a site offering poetry by people with brain injury Brain Injury Guide An online book written by a neuropsychologist. Written in user friendly language, offering very helpful information about what can happen after a brain injury. Chris Lynch a thorough diary of the brain injury rehabilitation process written by a young man in the military. Also has some great insights offered by his mother about the effect of brain injury on the family. Harold Kennel pages updates on the progress of a gentleman who sustained a severe TBI. Jean's Homepage an honest story about the rehabilitation and recovery process following a brain injury. JT Blakemore an insightful book about living with brain injury for over forty years. The website offers excerpts, information about brain injury and excellent links to all kinds of information. Road to Recovery a great pictorial offering images depicting the rehabilitation process of a young man in the military. TBI Life Taken from the website: "The purpose of this web site is to reach survivors of Traumatic Brain Injury and those individuals who are interested in knowing about the impact on an individual's life following one, and to provide a guide on living one's life after such an injury." POINTIS Rehab Team Site An informational site put together by the University of Miami School of Medicine. Offers useful information for providers and families for both SCI and ABI. Recovery Awareness Foundation Founded by the mother of a woman who sustained a brain injury, this site is full of hope, support, and ideas. Russell's Recovery Page This site offers an in depth account of Russel's brain injury and rehabilitation. A great site to see what rehabilitation is like, and learn about the process of brain injury rehabilitation. TBI Chatroom and Homepage This site offers several chatrooms, many types of message boards, and tons of good links to brain injury sites. Virtual Hospital: Acute Brain Injury - A Guide for Family and Friends An online booklet put together by the University of Iowa. The booklet presents basic information about what can happen in the acute stages following a brain injury. Written in non-technical language, a useful site to learn about the basics of brain injury. PreventionSafeUSA The SafeUSA Program is a cooperative effort between many organizations to develop and implement effective injury and violence prevention and education programs. Think FirstThe Think First National Injury Prevention Foundation is a national organization that provides education curricula specifically for school age children, and working to prevent the occurrence of one half million American traumatic injuries each year. Professional ResourcesAmerican Board of Professional Neuropsychology The American Board of Professional Neuropsychology (ABPN) recognizes and encourages the pursuit of excellence in the practice of clinical neuropsychology. ABPN's primary objective is the establishment of professional standards of expertise for the practice of clinical neuropsychology. American Trauma Society Dedicated to the prevention of trauma and the improvement of trauma care. Case Management Society of America The place to learn about case management. Offers information about case management, education, resources and membership. International Academy of Life Care PlannersA great resource for professionals engaged in the practice of life care planning. The Academy works to develop and improve life care planning standards, policies and practices. Kansas Emergency Medical TrainersAn association representing people who work in many areas of emergency medical services, with a common goal of serving our fellow human beings in time of need. The association works to improve critical trauma care. The Kansas Physical Therapy Association The KPTA is a member organization of physical therapists and physical therapist assistants in Kansas that works to ensure its members provide quality and ethical physical therapy services. National Association of EMS Educators Offers information on EMS training, advances in EMS training, and promotes education and research into trauma care. Neuro-Optometric Rehabilitation AssociationNORA is comprised of professionals focused to advance the art and science of rehabilitation/habilitation and the neurologically / cognitively injured and disabled survivor population and their families. NJ EMT Association The professional association for Emergency Service Responders in New Jersey. New York Academy of Traumatic Brain Injury, Inc. A multi-disciplinary, not-for-profit organization chartered by New York State as an educational corporation dedicated to the traumatic brain injury (TBI). NY Emergency Room RNSite for NY ER nurses to learn about professional resources, and other educational resources. Oklahoma EMT Association The professional group for EMT's in OKlahoma. Pediatric Critical Care Medicine A great resource for information about critical care issues specific to pediatric injury. The Society of Trauma Nurses Provides educational programs, mentoring, interest groups, outreach and services to its membership to assist trauma nurses in professional development. Programs/ServicesABLEDATA A federally funded project whose primary mission is to provide information on assistive technology and rehabilitation equipment available from domestic and international sources to consumers, organizations, professionals, and caregivers within the United States. Ability Hub A great place to learn about Assistive Technology specific to computers. Assistive Technology.Net They provide information on assistive technologies, adaptive environments and community resources for people with disabilities, including their families and service providers. Be Independent An online store for people with cognitive impairments. A wide offerings of tools and products. Brain SourceOffers information about brain functions, brain injury, and neuropsychology. Centre for NeuroskillsThe website of a brain injury rehabilitation program, the site offers a wide array of information, links and materials. One of the best informational sites out there. Humanim - a Community Re-entry brain injury program located in Maryland. Specializing in mild brain injury and behavioral issues post injury.Offers short term residential services. Lash and Associates A great resource for pediatric brain injury. The site also offers information useful to families, friends, teachers, and others. Lousiana TBI/SCI Trust Fund The mission of Louisiana's Traumatic Head and Spinal Cord Injury Trust Fund Program is to provide services in a flexible, individualized manner to Louisiana citizens who survive traumatic head or spinal cord injuries, enabling their return to a reasonable level of functioning and independent living in their communities. National Resource Center for Brain Injury Part of the Virginia Commonwealth University, this website offers user friendly books and tips for living with a brain injury. Ohio Valley Center A great resource for information about substance abuse and brain injury. Rehab Institute of Chicago The Rehabilitation Institute of Chicago (RIC) has been ranked the "Best Rehabilitation Hospital in America" by U.S. News & World Report since 1991. RIC has earned this recognition, in part, because of its leadership in providing rehabilitation services for brain injury survivors for more than two decades. RIC's Web site features information about Anoxic brain injury; Mild traumatic brain injury; Moderate traumatic brain injury; Severe traumatic brain injury; closed head injuries; concussions; brain tumor; disease entities (such as Encephalitis) and metabolic disorders that lead to brain injury. Rehab ToolRehabtool.com's mission is to help children and adults with disabilities enhance their lives, increase their independence and productivity, and gain greater social inclusion through the use of leading-edge assistive technology. Rehab Directory - Your one-stop destination for anything you can think about rehab. This Rehab Directory is designed to help its users find the rehab information, articles, source, companies, products and services. Shake a Leg They offer recreational opportunites for people who have sustained a SCI or other neurotrauma. Shepherd CenterA brain and spinal cord injury rehabilitation program in Georgia. Their website offers excellent information on both brain and spinal cord injury. Tammy Greenspan Head Injury CollectionA terrific collection of books specific to brain injury. You can borrow these books through the interlibrary loan system. A reference librarian experienced in brain injury literature can help you find the book to meet your needs. TIRR's National Database of Educational Resources on Traumatic Brain Injury The database contains information on more than 350 educational videotapes, audiotapes, and written materials that people with TBI, their family members and health care professionals can use. Transitional Learning CenterA program that works exclusively with people with brain injury. Their website offers good information and ideas. ResearchClinical Trials ListingClinicalTrials.gov provides regularly updated information about federally and privately supported clinical research in human volunteers. ClinicalTrials.gov gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details. Dana Foundation A great site to learn about the brain and cutting edge advances occuring in brain research. Mt. Sinai Brain Injury Training and Research Center Rehab Trials A listing of rehabilitation trials. This is a more specific listing than the Clinical Trials website. The site lists study information from several centers. Support Groups and Advocacy
Brain Injury Association State Affiliates Contact Information The BIAA website offers contact information for their state affiliates and other groups that can offer support and information following a brain injury. The best place on the web to find information on support after a brain injury. Brain Injury Society The Brain Injury Society offers support to people in the NYC area. The website offers great information on brain injury and the rehabilitation process. Brain Injury Resource FoundationA site offering resources on brain injury. Lists supports groups in Georgia. Links to many other useful brain injury sites. Offers many online articles on all aspects of brain injury. CNSV NETCNSV - Central Nervous System Vasculitis (CNSV) is a rare but serious condition. Learn more about it, and gather support, information and news about CNSV. Stand Among Friends Stand Among Friends (SAF) has worked diligently and continues its efforts to promote research, education and advocacy of all neurological disorders. The Perspectives Network Offers excellent online articles in many different languages, a great resource to learn about brain injury. TBI Model SystemsThe TBI Model Systems (TBIMS) were established in 1987 through a grant from the United States Department of Education, National Institute on Disability Rehabilitation and Research (NIDRR).
JFK-Johnson Rehabilitation Institute Traumatic Brain Injury Model System Edison, NJ www.njrehab.org Mayo Medical Center Department of Physical Medicine and Rehabilitation Rochester, Minnesota www.mayo.edu/model-system New York TBI Model System Mount Sinai School of Medicine New York, NY www.mssm.edu/tbinet North Texas TBI Model System University of Texas Southwestern Medical Center and Baylor Institute of Rehabilitation Dallas, TX www3.utsouthwestern.edu/ Northern California TBI Model System Santa Clara Valley Medical Center San Jose, California www.tbi-sci.org The Ohio Regional TBI Model System Ohio State University Columbus, Ohio www.ohiovalley.org Rocky Mountain Regional Brain Injury System Craig Hospital Englewood, Colorado www.craig-hospital.org Southeastern Michigan Traumatic Brain Injury System Rehabilitation Institute of Michigan Detroit, Michigan www.semtbis.org Spaulding/Partners TBI Model System at Harvard Medical School Spaulding Rehabilitation Hospital Boston, Massachusetts www.spauldingrehab.org/ TBI Model System of Pennsylvania at Moss Rehabilitation Moss Rehabilitation Research Institute Philadelphia, Pennsylvania www.einstein.edu/e3front.dll?durki=8091 TBI Model System of Mississippi Mississippi Methodist Hospital and Rehabilitation Center Jackson, Mississippi www.mmrcrehab.org University of Alabama at Birmingham TBI Care System Spain Rehabilitation Center Birmingham, Alabama www.uab.edu/tbi University of Pittsburgh Medical Center TBI Model System Dept. of Physical Medicine and Rehabilitation Pittsburgh, Pennsylvania www.upmc.com The Virginia Commonwealth TBI Model System Virginia Commonwealth University/Medical Center College of Virginia Richmond, Virginia www.neuro.pmr.vcu.edu University of Washington TBI Model System Seattle, Washington http://depts.washington.edu/rehab/tbi |